Using Palliative Care in Progressive Neuromuscular Disease to Maximize Quality of Life

Gregory T. Carter, Nanette Joyce, Allison L. Abresch, Amanda E. Smith, Gregg K. VandeKeift

Research output: Contribution to journalArticle

7 Scopus citations

Abstract

This article discusses the role of palliative care in the treatment pathway of patients with progressive neuromuscular disease (NDM), including amyotrophic lateral sclerosis and Duchenne muscular dystrophy (DMD). People with severe NMDs like DMD are now living much longer, well in to adulthood. This makes them suitable for the medical model of palliative care. Yet palliative medicine is a new area, especially for "adults" with DMD. Strategies for identifying the most effective modalities to alleviate suffering in patients with an NMD receiving palliative services and creating best practice standards in pain and symptom management for this patient population are discussed.

Original languageEnglish (US)
Pages (from-to)903-909
Number of pages7
JournalPhysical Medicine and Rehabilitation Clinics of North America
Volume23
Issue number4
DOIs
StatePublished - Nov 2012

Keywords

  • Burden of disease
  • Chronic pain
  • Muscular dystrophy
  • Neuromuscular disease
  • Palliative care
  • Quality of life

ASJC Scopus subject areas

  • Rehabilitation
  • Physical Therapy, Sports Therapy and Rehabilitation

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