The Spanish translation and adaptation of the Uniform Data Set of the National Institute on Aging Alzheimer's Disease Centers

Amarilis Acevedo, Kristin R. Krueger, Ellen Navarro, Freddy Ortiz, Jennifer J. Manly, Margarita M. Padilla-Vélez, Sandra Weintraub, Oscar L. López, Dan M Mungas

Research output: Contribution to journalArticle

24 Citations (Scopus)

Abstract

Researchers from Alzheimer's Disease Centers (ADCs) across the United States with expertise in the assessment of Spanish-speaking elderly collaborated to create the official Spanish version of measures in the Uniform Data Set of the National Institute on Aging Alzheimer's Disease Center Program. The present article describes this project, whose primary goal was to create Spanish instruments with cultural and linguistic equivalence to the English versions. The resulting Spanish versions make provisions for variations among Spanish-speaking groups in the United States of different nationalities, socio-cultural, linguistic, and educational backgrounds. A consensus-based translation and adaptation approach was used, and guiding principles and specific components of this process are summarized. The Spanish translation and adaptation of the Uniform Data Set measures became available online to ADCs in April 2007. Its creation is important, as the resulting effort provides standardized measures for the collection of cross-sectional and longitudinal data on a large cohort of Spanish-speaking elders across the country and facilitates collaborative research among ADCs.

Original languageEnglish (US)
Pages (from-to)102-109
Number of pages8
JournalAlzheimer Disease and Associated Disorders
Volume23
Issue number2
DOIs
StatePublished - Apr 2009

Fingerprint

National Institute on Aging (U.S.)
Alzheimer Disease
Linguistics
Ethnic Groups
Consensus
Research Personnel
Datasets
Research

Keywords

  • Aging
  • Alzheimer disease
  • Hispanic
  • Mild cognitive impairment
  • Neuropsychologic
  • Spanish

ASJC Scopus subject areas

  • Geriatrics and Gerontology
  • Psychiatry and Mental health
  • Gerontology
  • Clinical Psychology

Cite this

The Spanish translation and adaptation of the Uniform Data Set of the National Institute on Aging Alzheimer's Disease Centers. / Acevedo, Amarilis; Krueger, Kristin R.; Navarro, Ellen; Ortiz, Freddy; Manly, Jennifer J.; Padilla-Vélez, Margarita M.; Weintraub, Sandra; López, Oscar L.; Mungas, Dan M.

In: Alzheimer Disease and Associated Disorders, Vol. 23, No. 2, 04.2009, p. 102-109.

Research output: Contribution to journalArticle

Acevedo, Amarilis ; Krueger, Kristin R. ; Navarro, Ellen ; Ortiz, Freddy ; Manly, Jennifer J. ; Padilla-Vélez, Margarita M. ; Weintraub, Sandra ; López, Oscar L. ; Mungas, Dan M. / The Spanish translation and adaptation of the Uniform Data Set of the National Institute on Aging Alzheimer's Disease Centers. In: Alzheimer Disease and Associated Disorders. 2009 ; Vol. 23, No. 2. pp. 102-109.
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