The power of labels: Recruiting dementia-affected Chinese American elders and their caregivers

Z. Guo, B. R. Levy, W Ladson Hinton, P. F. Weitzman, S. E. Levkoff

Research output: Contribution to journalArticle

47 Scopus citations

Abstract

Recruiting Chinese American participants into studies of Alzheimer's disease and dementia can be particularly challenging because of the powerful social stigma attached to mental illness in Chinese cultures. In this article, we describe experiences recruiting Chinese American individuals into a cross-cultural qualitative study of dementia caregiving. Based on multiple sources of data from caregivers who participated in our study, those who declined participation, and Chinese American health care providers, we have identified a process of dementia-label avoidance engaged in by both Chinese American families and health care providers. We describe how this process can interfere with the recruitment of Chinese American participants into studies of mental illness and offer strategies for enhancing recruitment success.

Original languageEnglish (US)
Pages (from-to)103-112
Number of pages10
JournalJournal of Mental Health and Aging
Volume6
Issue number1
StatePublished - 2000
Externally publishedYes

ASJC Scopus subject areas

  • Geriatrics and Gerontology
  • Psychiatry and Mental health

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