Take up the caregiver's burden

Stories of care for Urban African American elders with dementia

Kenneth Fox, W Ladson Hinton, Sue Levkoff

Research output: Contribution to journalArticle

56 Citations (Scopus)

Abstract

This pilot study uses an anthropological gaze to analyze transcripts of extended in-home interviews among a set of ten caregivers of African-American elders with dementia. How are race and ethnicity made to matter in the recognition of, the meaning-making around and the responses to dementing illness among a sample of African-American caregivers? The essay contrasts prevailing cultural representations of African-American caregiver burden with caregiver interview data. What we find is that current constructs which consistently demonstrate "lesser burden" among African-American caregivers compared with Whites may not adequately capture these caregivers' experiences. Interpretations of experiences, meanings of "burden" and the logic of symptoms in the illness narratives generated by these African-American caregivers of elders with dementia require attention to the embodiment of large scale sociopolitical and historical forces like residential, educational and occupational segregation, institutional racism, and economic exploitation over the life course.

Original languageEnglish (US)
Pages (from-to)501-529
Number of pages29
JournalCulture, Medicine and Psychiatry
Volume23
Issue number4
StatePublished - 1999

Fingerprint

dementia
African Americans
Caregivers
caregiver
Dementia
illness
Interviews
Racism
Anthropology
interview
American
Elders
Burden
segregation
racism
exploitation
experience
ethnicity
Economics
narrative

ASJC Scopus subject areas

  • Psychiatry and Mental health
  • Social Sciences (miscellaneous)
  • Anthropology

Cite this

Take up the caregiver's burden : Stories of care for Urban African American elders with dementia. / Fox, Kenneth; Hinton, W Ladson; Levkoff, Sue.

In: Culture, Medicine and Psychiatry, Vol. 23, No. 4, 1999, p. 501-529.

Research output: Contribution to journalArticle

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