Abstract
Background: This study aimed to describe and compare the sexual and reproductive health (SRH) care utilization among young women with cystic fibrosis (CF) with the general United States (U.S.) population. Methods: Women with CF ages 15-24. years from five geographically diverse U.S. CF centers participated in a survey investigating SRH. Results were summarized and compared to a nationally representative sample of young women aged 15-24 who participated in the U.S. National Survey of Family Growth (NSFG) using logistic regression to adjust for confounders. Results: A total of 188 women with CF (19.7. ±. 2.7. years) completed the survey; data were compared to 1997 NSFG respondents (19.6. ±. 0.10. years). Women with CF had lower lifetime rates of ever obtaining a Pap smear or pelvic exam (26% vs. 57%; p <. 0.001) and similar rates of HPV vaccination (44% vs. 43%; p = 0.64) compared to NSFG respondents. Thirty-seven percent of women with CF reported seeking contraception and <. 10% reported contraceptive counseling, STI testing/counseling, or pregnancy testing in their lifetime. In the prior 12. months, 41% of NSFG respondents reported seeking contraception, 24% received contraceptive counseling, 22% STI testing/counseling, and 23% pregnancy testing. A minority of women with CF received or discussed SRH care in the CF setting, although 66% wanted to discuss SRH with their CF team. Conclusions: Young women with CF report low rates of SRH care utilization and desire SRH discussions in the CF setting. Interventions should target improved SRH care delivery and encourage patient-provider communication around SRH in the CF care setting.
| Original language | English (US) |
|---|---|
| Journal | Journal of Cystic Fibrosis |
| DOIs | |
| State | Accepted/In press - 2017 |
| Externally published | Yes |
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Keywords
- Cystic fibrosis
- Sexual and reproductive health
- Women's health
ASJC Scopus subject areas
- Pediatrics, Perinatology, and Child Health
- Pulmonary and Respiratory Medicine
Cite this
Sexual and reproductive health care utilization and preferences reported by young women with cystic fibrosis. / Kazmerski, Traci M.; Sawicki, Gregory S.; Miller, Elizabeth; Jones, Kelley A.; Abebe, Kaleab Z.; Tuchman, Lisa K.; Ladores, Sigrid; Rubenstein, Ronald C.; Sagel, Scott D.; Weiner, Daniel J.; Pilewski, Joseph M.; Orenstein, David M.; Borrero, Sonya.
In: Journal of Cystic Fibrosis, 2017.Research output: Contribution to journal › Article
}
TY - JOUR
T1 - Sexual and reproductive health care utilization and preferences reported by young women with cystic fibrosis
AU - Kazmerski, Traci M.
AU - Sawicki, Gregory S.
AU - Miller, Elizabeth
AU - Jones, Kelley A.
AU - Abebe, Kaleab Z.
AU - Tuchman, Lisa K.
AU - Ladores, Sigrid
AU - Rubenstein, Ronald C.
AU - Sagel, Scott D.
AU - Weiner, Daniel J.
AU - Pilewski, Joseph M.
AU - Orenstein, David M.
AU - Borrero, Sonya
PY - 2017
Y1 - 2017
N2 - Background: This study aimed to describe and compare the sexual and reproductive health (SRH) care utilization among young women with cystic fibrosis (CF) with the general United States (U.S.) population. Methods: Women with CF ages 15-24. years from five geographically diverse U.S. CF centers participated in a survey investigating SRH. Results were summarized and compared to a nationally representative sample of young women aged 15-24 who participated in the U.S. National Survey of Family Growth (NSFG) using logistic regression to adjust for confounders. Results: A total of 188 women with CF (19.7. ±. 2.7. years) completed the survey; data were compared to 1997 NSFG respondents (19.6. ±. 0.10. years). Women with CF had lower lifetime rates of ever obtaining a Pap smear or pelvic exam (26% vs. 57%; p <. 0.001) and similar rates of HPV vaccination (44% vs. 43%; p = 0.64) compared to NSFG respondents. Thirty-seven percent of women with CF reported seeking contraception and <. 10% reported contraceptive counseling, STI testing/counseling, or pregnancy testing in their lifetime. In the prior 12. months, 41% of NSFG respondents reported seeking contraception, 24% received contraceptive counseling, 22% STI testing/counseling, and 23% pregnancy testing. A minority of women with CF received or discussed SRH care in the CF setting, although 66% wanted to discuss SRH with their CF team. Conclusions: Young women with CF report low rates of SRH care utilization and desire SRH discussions in the CF setting. Interventions should target improved SRH care delivery and encourage patient-provider communication around SRH in the CF care setting.
AB - Background: This study aimed to describe and compare the sexual and reproductive health (SRH) care utilization among young women with cystic fibrosis (CF) with the general United States (U.S.) population. Methods: Women with CF ages 15-24. years from five geographically diverse U.S. CF centers participated in a survey investigating SRH. Results were summarized and compared to a nationally representative sample of young women aged 15-24 who participated in the U.S. National Survey of Family Growth (NSFG) using logistic regression to adjust for confounders. Results: A total of 188 women with CF (19.7. ±. 2.7. years) completed the survey; data were compared to 1997 NSFG respondents (19.6. ±. 0.10. years). Women with CF had lower lifetime rates of ever obtaining a Pap smear or pelvic exam (26% vs. 57%; p <. 0.001) and similar rates of HPV vaccination (44% vs. 43%; p = 0.64) compared to NSFG respondents. Thirty-seven percent of women with CF reported seeking contraception and <. 10% reported contraceptive counseling, STI testing/counseling, or pregnancy testing in their lifetime. In the prior 12. months, 41% of NSFG respondents reported seeking contraception, 24% received contraceptive counseling, 22% STI testing/counseling, and 23% pregnancy testing. A minority of women with CF received or discussed SRH care in the CF setting, although 66% wanted to discuss SRH with their CF team. Conclusions: Young women with CF report low rates of SRH care utilization and desire SRH discussions in the CF setting. Interventions should target improved SRH care delivery and encourage patient-provider communication around SRH in the CF care setting.
KW - Cystic fibrosis
KW - Sexual and reproductive health
KW - Women's health
UR - http://www.scopus.com/inward/record.url?scp=85028513002&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85028513002&partnerID=8YFLogxK
U2 - 10.1016/j.jcf.2017.08.009
DO - 10.1016/j.jcf.2017.08.009
M3 - Article
AN - SCOPUS:85028513002
JO - Journal of Cystic Fibrosis
JF - Journal of Cystic Fibrosis
SN - 1569-1993
ER -