Registration and classification of adolescent and young adult cancer cases

Bradley H Pollock, Jillian M. Birch

Research output: Contribution to journalArticle

27 Citations (Scopus)

Abstract

Cancer registries are an important research resource that facilitate the study of etiology, tumor biology, patterns of delayed diagnosis and health planning needs. When outcome data are included, registries can track secular changes in survival related to improvements in early detection or treatment. The surveillance, epidemiology, and end results (SEER) registry has been used to identify major gaps in survival for older adolescent and young adult (AYA) patients compared with younger children and older adults. In order to determine the reasons for this gap, the complete registration and accurate classification of AYA malignancies is necessary. There are inconsistencies in defining the age limits for AYAs although the Adolescent and Young Adult Oncology Progress Review Group proposed a definition of ages 15 through 39 years. The central registration and classification issues for AYAs are case-finding, defining common data elements (CDE) collected across different registries and the diagnostic classification of these malignancies. Goals to achieve by 2010 include extending and validating current diagnostic classification schemes and expanding the CDE to support AYA oncology research, including the collection of tracking information to assess long-term outcomes. These efforts will advance preventive, etiologic, therapeutic, and health services-related research for this understudied age group.

Original languageEnglish (US)
Pages (from-to)1090-1093
Number of pages4
JournalPediatric Blood and Cancer
Volume50
Issue number5 SUPPL.
DOIs
StatePublished - May 2008
Externally publishedYes

Fingerprint

Registries
Young Adult
Neoplasms
Health Planning
Survival
Health Services Research
Delayed Diagnosis
Research
Epidemiology
Age Groups
Therapeutics
Common Data Elements

Keywords

  • Classification
  • Registration

ASJC Scopus subject areas

  • Cancer Research
  • Pediatrics, Perinatology, and Child Health
  • Hematology

Cite this

Registration and classification of adolescent and young adult cancer cases. / Pollock, Bradley H; Birch, Jillian M.

In: Pediatric Blood and Cancer, Vol. 50, No. 5 SUPPL., 05.2008, p. 1090-1093.

Research output: Contribution to journalArticle

@article{7272286053884dc5aa8357ac0ef3468d,
title = "Registration and classification of adolescent and young adult cancer cases",
abstract = "Cancer registries are an important research resource that facilitate the study of etiology, tumor biology, patterns of delayed diagnosis and health planning needs. When outcome data are included, registries can track secular changes in survival related to improvements in early detection or treatment. The surveillance, epidemiology, and end results (SEER) registry has been used to identify major gaps in survival for older adolescent and young adult (AYA) patients compared with younger children and older adults. In order to determine the reasons for this gap, the complete registration and accurate classification of AYA malignancies is necessary. There are inconsistencies in defining the age limits for AYAs although the Adolescent and Young Adult Oncology Progress Review Group proposed a definition of ages 15 through 39 years. The central registration and classification issues for AYAs are case-finding, defining common data elements (CDE) collected across different registries and the diagnostic classification of these malignancies. Goals to achieve by 2010 include extending and validating current diagnostic classification schemes and expanding the CDE to support AYA oncology research, including the collection of tracking information to assess long-term outcomes. These efforts will advance preventive, etiologic, therapeutic, and health services-related research for this understudied age group.",
keywords = "Classification, Registration",
author = "Pollock, {Bradley H} and Birch, {Jillian M.}",
year = "2008",
month = "5",
doi = "10.1002/pbc.21462",
language = "English (US)",
volume = "50",
pages = "1090--1093",
journal = "Pediatric Blood and Cancer",
issn = "1545-5009",
publisher = "Wiley-Liss Inc.",
number = "5 SUPPL.",

}

TY - JOUR

T1 - Registration and classification of adolescent and young adult cancer cases

AU - Pollock, Bradley H

AU - Birch, Jillian M.

PY - 2008/5

Y1 - 2008/5

N2 - Cancer registries are an important research resource that facilitate the study of etiology, tumor biology, patterns of delayed diagnosis and health planning needs. When outcome data are included, registries can track secular changes in survival related to improvements in early detection or treatment. The surveillance, epidemiology, and end results (SEER) registry has been used to identify major gaps in survival for older adolescent and young adult (AYA) patients compared with younger children and older adults. In order to determine the reasons for this gap, the complete registration and accurate classification of AYA malignancies is necessary. There are inconsistencies in defining the age limits for AYAs although the Adolescent and Young Adult Oncology Progress Review Group proposed a definition of ages 15 through 39 years. The central registration and classification issues for AYAs are case-finding, defining common data elements (CDE) collected across different registries and the diagnostic classification of these malignancies. Goals to achieve by 2010 include extending and validating current diagnostic classification schemes and expanding the CDE to support AYA oncology research, including the collection of tracking information to assess long-term outcomes. These efforts will advance preventive, etiologic, therapeutic, and health services-related research for this understudied age group.

AB - Cancer registries are an important research resource that facilitate the study of etiology, tumor biology, patterns of delayed diagnosis and health planning needs. When outcome data are included, registries can track secular changes in survival related to improvements in early detection or treatment. The surveillance, epidemiology, and end results (SEER) registry has been used to identify major gaps in survival for older adolescent and young adult (AYA) patients compared with younger children and older adults. In order to determine the reasons for this gap, the complete registration and accurate classification of AYA malignancies is necessary. There are inconsistencies in defining the age limits for AYAs although the Adolescent and Young Adult Oncology Progress Review Group proposed a definition of ages 15 through 39 years. The central registration and classification issues for AYAs are case-finding, defining common data elements (CDE) collected across different registries and the diagnostic classification of these malignancies. Goals to achieve by 2010 include extending and validating current diagnostic classification schemes and expanding the CDE to support AYA oncology research, including the collection of tracking information to assess long-term outcomes. These efforts will advance preventive, etiologic, therapeutic, and health services-related research for this understudied age group.

KW - Classification

KW - Registration

UR - http://www.scopus.com/inward/record.url?scp=41849117738&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=41849117738&partnerID=8YFLogxK

U2 - 10.1002/pbc.21462

DO - 10.1002/pbc.21462

M3 - Article

VL - 50

SP - 1090

EP - 1093

JO - Pediatric Blood and Cancer

JF - Pediatric Blood and Cancer

SN - 1545-5009

IS - 5 SUPPL.

ER -