Practices and perspectives on building integrated data repositories: Results from a 2010 CTSA survey

Sandra L. MacKenzie, Matt C. Wyatt, Robert Schuff, Jessica D. Tenenbaum, Nicholas Anderson

Research output: Contribution to journalArticle

31 Citations (Scopus)

Abstract

Clinical integrated data repositories (IDRs) are poised to become a foundational element of biomedical and translational research by providing the coordinated data sources necessary to conduct retrospective analytic research and to identify and recruit prospective research subjects. The Clinical and Translational Science Award (CTSA) consortium's Informatics IDR Group conducted a survey of 2010 consortium members to evaluate recent trends in IDR implementation and use to support research between 2008 and 2010. A web-based survey based in part on a prior 2008 survey was developed and deployed to 46 national CTSA centers. A total of 35 separate organizations completed the survey (74%), representing 28 CTSAs and the National Institutes of Health Clinical Center. Survey results suggest that individual organizations are progressing in their approaches to the development, management, and use of IDRs as a means to support a broad array of research. We describe the major trends and emerging practices below.

Original languageEnglish (US)
JournalJournal of the American Medical Informatics Association
Volume19
Issue numberE1
DOIs
StatePublished - Jun 2012
Externally publishedYes

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Research
Organizations
Research Subjects
Informatics
Translational Medical Research
Information Storage and Retrieval
National Institutes of Health (U.S.)
Biomedical Research
Surveys and Questionnaires

ASJC Scopus subject areas

  • Health Informatics

Cite this

Practices and perspectives on building integrated data repositories : Results from a 2010 CTSA survey. / MacKenzie, Sandra L.; Wyatt, Matt C.; Schuff, Robert; Tenenbaum, Jessica D.; Anderson, Nicholas.

In: Journal of the American Medical Informatics Association, Vol. 19, No. E1, 06.2012.

Research output: Contribution to journalArticle

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