Organizing online health content: Developing hashtag collections for healthier internet-based people and communities

Matthew S. Katz, Patricia F. Anderson, Michael A. Thompson, Liz Salmi, Janet Freeman-Daily, Audun Utengen, Don S. Dizon, Charlie Blotner, David T. Cooke, Dee Sparacio, Alicia C. Staley, Michael J. Fisch, Colleen Young, Deanna J. Attai

Research output: Contribution to journalArticle

1 Scopus citations

Abstract

Twitter use has increased among patients with cancer, advocates, and oncology professionals. Hashtags, a form of metadata, can be used to share content, organize health information, and create virtual communities of interest. Cancer-specific hashtags modeled on a breast cancer community, #bcsm, led to the development of a structured set of hashtags called the cancer tag ontology. In this article, we review how these hashtags have worked with the aim of describing our experience from 2011 to 2017. We discuss useful guidelines for the development and maintenance of health-oriented communities on Twitter, including possible challenges to community sustainability and opportunities for future improvement and research.

Original languageEnglish (US)
JournalJCO Clinical Cancer Informatics
Volume3
DOIs
StatePublished - Jan 1 2019

ASJC Scopus subject areas

  • Cancer Research
  • Oncology
  • Health Informatics

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    Katz, M. S., Anderson, P. F., Thompson, M. A., Salmi, L., Freeman-Daily, J., Utengen, A., Dizon, D. S., Blotner, C., Cooke, D. T., Sparacio, D., Staley, A. C., Fisch, M. J., Young, C., & Attai, D. J. (2019). Organizing online health content: Developing hashtag collections for healthier internet-based people and communities. JCO Clinical Cancer Informatics, 3. https://doi.org/10.1200/CCI.18.00124