Methods for assessment of health outcomes in children with burn injury: the Multi-Center Benchmarking Study.

Lewis E. Kazis, Austin F. Lee, Michelle Hinson, Matthew H. Liang, Mary W. Rose, Tina L Palmieri, Walter J. Meyer, Richard J. Kagan, Nien Chen Li, Ronald G. Tompkins, Benchmarking Study Working Group Multi-Center Benchmarking Study Working Group

Research output: Contribution to journalArticle

10 Citations (Scopus)

Abstract

The Multi-Center Benchmarking Study (MCBS) is an innovative program giving a new paradigm for monitoring health outcomes in children and adolescents with burn injuries. This article presents the methodologies for conducting a multicenter long-term cohort study of 1,140 children and adolescents with small to large burn injuries followed from the acute burn discharge at four burn centers for up to 4 years. The components for this project include a broad and rich range of patient-centered health assessments tailored to children with burn injury, an infrastructure for obtaining relevant clinical data, and patient-centered questionnaire data based on validated Shriners Hospitals for Children/American Burn Association Burn Outcomes Questionnaire (BOQ) and Short-Form Psychosocial Questionnaire, aged 0 years to 18 years. Recovery curves are described for analysis of complex data with repeated measures that are based on mixed models and generalized estimating equations, with adjustments for clinical characteristics. Accrual rates are as high as 93%, and follow-up rates of completion are 65%. Recovery curves for selected BOQ domains (upper extremity function, patient compliance, and parental concern) are presented for those children and adolescents aged 5 years to 18 years using the rich cohort of data from the MCBS. Results suggest that the BOQ is sensitive and responsive to capturing differences in the rate and levels of change over time. The methods implemented in the MCBS are a useful model for conducting large multicenter studies to track the clinical and quality of life of children with burn injuries.

Original languageEnglish (US)
JournalThe journal of trauma and acute care surgery
Volume73
Issue number3 Suppl 2
StatePublished - Sep 2012

Fingerprint

Benchmarking
Outcome Assessment (Health Care)
Health
Wounds and Injuries
Burn Units
Patient Compliance
Upper Extremity
Multicenter Studies
Cohort Studies
Quality of Life
Surveys and Questionnaires

ASJC Scopus subject areas

  • Medicine(all)

Cite this

Kazis, L. E., Lee, A. F., Hinson, M., Liang, M. H., Rose, M. W., Palmieri, T. L., ... Multi-Center Benchmarking Study Working Group, B. S. W. G. (2012). Methods for assessment of health outcomes in children with burn injury: the Multi-Center Benchmarking Study. The journal of trauma and acute care surgery, 73(3 Suppl 2).

Methods for assessment of health outcomes in children with burn injury : the Multi-Center Benchmarking Study. / Kazis, Lewis E.; Lee, Austin F.; Hinson, Michelle; Liang, Matthew H.; Rose, Mary W.; Palmieri, Tina L; Meyer, Walter J.; Kagan, Richard J.; Li, Nien Chen; Tompkins, Ronald G.; Multi-Center Benchmarking Study Working Group, Benchmarking Study Working Group.

In: The journal of trauma and acute care surgery, Vol. 73, No. 3 Suppl 2, 09.2012.

Research output: Contribution to journalArticle

Kazis, LE, Lee, AF, Hinson, M, Liang, MH, Rose, MW, Palmieri, TL, Meyer, WJ, Kagan, RJ, Li, NC, Tompkins, RG & Multi-Center Benchmarking Study Working Group, BSWG 2012, 'Methods for assessment of health outcomes in children with burn injury: the Multi-Center Benchmarking Study.', The journal of trauma and acute care surgery, vol. 73, no. 3 Suppl 2.
Kazis, Lewis E. ; Lee, Austin F. ; Hinson, Michelle ; Liang, Matthew H. ; Rose, Mary W. ; Palmieri, Tina L ; Meyer, Walter J. ; Kagan, Richard J. ; Li, Nien Chen ; Tompkins, Ronald G. ; Multi-Center Benchmarking Study Working Group, Benchmarking Study Working Group. / Methods for assessment of health outcomes in children with burn injury : the Multi-Center Benchmarking Study. In: The journal of trauma and acute care surgery. 2012 ; Vol. 73, No. 3 Suppl 2.
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