Measuring the Impact of Burn Injury on the Parent-Reported Health Outcomes of Children 1 to 5 Years: A Conceptual Framework for Development of the Preschool Life Impact Burn Recovery Evaluation Profile CAT

Keri J.S. Brady, Gabrielle G. Grant, Frederick J. Stoddard, Walter J. Meyer, Kathleen S. Romanowski, Philip H. Chang, Lynda E. Painting, Laura A. Fowler, Judith K. Nelson, Perla Rivas, Kathryn Epperson, Robert L. Sheridan, Michael Murphy, Ellen H. O'Donnell, T. Atilla Ceranoglu, R. Christopher Sheldrick, Pengsheng Ni, Mary D. Slavin, Petra Warner, Tina L. PalmieriJeffrey C. Schneider, Lewis E. Kazis, Colleen M. Ryan

Research output: Contribution to journalArticle

Abstract

Due to the rapid developmental growth in preschool-aged children, more precise measurement of the effects of burns on child health outcomes is needed. Expanding upon the Shriners Hospitals for Children/American Burn Association Burn Outcome Questionnaire 0 to 5 (BOQ0-5), we developed a conceptual framework describing domains important in assessing recovery from burn injury among preschool-aged children (1-5 years). We developed a working conceptual framework based on the BOQ0-5, the National Research Council and Institute of Medicine's Model of Child Health, and the World Health Organization's International Classification of Functioning, Disability, and Health for Children and Youth. We iteratively refined our framework based on a literature review, focus groups, interviews, and expert consensus meetings. Data were qualitatively analyzed using methods informed by grounded theory. We reviewed 95 pediatric assessments, conducted two clinician focus groups and six parent interviews, and consulted with 23 clinician experts. Three child health outcome domains emerged from our analysis: symptoms, functioning, and family. The symptoms domain describes parents' perceptions of their child's pain, skin-related discomfort, and fatigue. The functioning domain describes children's physical functioning (gross and fine motor function), psychological functioning (internalizing, externalizing, and dysregulation behavior; trauma; toileting; resilience), communication and language development (receiving and producing meaning), and social functioning (connecting with family/peers, friendships, and play). The family domain describes family psychological and routine functioning outcomes.

Original languageEnglish (US)
Pages (from-to)84-94
Number of pages11
JournalJournal of burn care & research : official publication of the American Burn Association
Volume41
Issue number1
DOIs
StatePublished - Jan 30 2020

ASJC Scopus subject areas

  • Surgery
  • Emergency Medicine
  • Rehabilitation

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    Brady, K. J. S., Grant, G. G., Stoddard, F. J., Meyer, W. J., Romanowski, K. S., Chang, P. H., Painting, L. E., Fowler, L. A., Nelson, J. K., Rivas, P., Epperson, K., Sheridan, R. L., Murphy, M., O'Donnell, E. H., Ceranoglu, T. A., Sheldrick, R. C., Ni, P., Slavin, M. D., Warner, P., ... Ryan, C. M. (2020). Measuring the Impact of Burn Injury on the Parent-Reported Health Outcomes of Children 1 to 5 Years: A Conceptual Framework for Development of the Preschool Life Impact Burn Recovery Evaluation Profile CAT. Journal of burn care & research : official publication of the American Burn Association, 41(1), 84-94. https://doi.org/10.1093/jbcr/irz110