TY - JOUR
T1 - Measuring the Impact of Burn Injury on the Parent-Reported Health Outcomes of Children 1 to 5 Years
T2 - A Conceptual Framework for Development of the Preschool Life Impact Burn Recovery Evaluation Profile CAT
AU - Brady, Keri J.S.
AU - Grant, Gabrielle G.
AU - Stoddard, Frederick J.
AU - Meyer, Walter J.
AU - Romanowski, Kathleen S.
AU - Chang, Philip H.
AU - Painting, Lynda E.
AU - Fowler, Laura A.
AU - Nelson, Judith K.
AU - Rivas, Perla
AU - Epperson, Kathryn
AU - Sheridan, Robert L.
AU - Murphy, Michael
AU - O'Donnell, Ellen H.
AU - Ceranoglu, T. Atilla
AU - Sheldrick, R. Christopher
AU - Ni, Pengsheng
AU - Slavin, Mary D.
AU - Warner, Petra
AU - Palmieri, Tina L.
AU - Schneider, Jeffrey C.
AU - Kazis, Lewis E.
AU - Ryan, Colleen M.
PY - 2020/1/30
Y1 - 2020/1/30
N2 - Due to the rapid developmental growth in preschool-aged children, more precise measurement of the effects of burns on child health outcomes is needed. Expanding upon the Shriners Hospitals for Children/American Burn Association Burn Outcome Questionnaire 0 to 5 (BOQ0-5), we developed a conceptual framework describing domains important in assessing recovery from burn injury among preschool-aged children (1-5 years). We developed a working conceptual framework based on the BOQ0-5, the National Research Council and Institute of Medicine's Model of Child Health, and the World Health Organization's International Classification of Functioning, Disability, and Health for Children and Youth. We iteratively refined our framework based on a literature review, focus groups, interviews, and expert consensus meetings. Data were qualitatively analyzed using methods informed by grounded theory. We reviewed 95 pediatric assessments, conducted two clinician focus groups and six parent interviews, and consulted with 23 clinician experts. Three child health outcome domains emerged from our analysis: symptoms, functioning, and family. The symptoms domain describes parents' perceptions of their child's pain, skin-related discomfort, and fatigue. The functioning domain describes children's physical functioning (gross and fine motor function), psychological functioning (internalizing, externalizing, and dysregulation behavior; trauma; toileting; resilience), communication and language development (receiving and producing meaning), and social functioning (connecting with family/peers, friendships, and play). The family domain describes family psychological and routine functioning outcomes.
AB - Due to the rapid developmental growth in preschool-aged children, more precise measurement of the effects of burns on child health outcomes is needed. Expanding upon the Shriners Hospitals for Children/American Burn Association Burn Outcome Questionnaire 0 to 5 (BOQ0-5), we developed a conceptual framework describing domains important in assessing recovery from burn injury among preschool-aged children (1-5 years). We developed a working conceptual framework based on the BOQ0-5, the National Research Council and Institute of Medicine's Model of Child Health, and the World Health Organization's International Classification of Functioning, Disability, and Health for Children and Youth. We iteratively refined our framework based on a literature review, focus groups, interviews, and expert consensus meetings. Data were qualitatively analyzed using methods informed by grounded theory. We reviewed 95 pediatric assessments, conducted two clinician focus groups and six parent interviews, and consulted with 23 clinician experts. Three child health outcome domains emerged from our analysis: symptoms, functioning, and family. The symptoms domain describes parents' perceptions of their child's pain, skin-related discomfort, and fatigue. The functioning domain describes children's physical functioning (gross and fine motor function), psychological functioning (internalizing, externalizing, and dysregulation behavior; trauma; toileting; resilience), communication and language development (receiving and producing meaning), and social functioning (connecting with family/peers, friendships, and play). The family domain describes family psychological and routine functioning outcomes.
UR - http://www.scopus.com/inward/record.url?scp=85078692731&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85078692731&partnerID=8YFLogxK
U2 - 10.1093/jbcr/irz110
DO - 10.1093/jbcr/irz110
M3 - Article
C2 - 31222201
AN - SCOPUS:85078692731
VL - 41
SP - 84
EP - 94
JO - Journal of Burn Care and Research
JF - Journal of Burn Care and Research
SN - 1559-047X
IS - 1
ER -