Families' Views of Pediatric Palliative Aquatics: A Qualitative Study

Erin Gaab, David M. Steinhorn

Research output: Contribution to journalArticle

1 Citation (Scopus)

Abstract

Although pediatric palliative care policies and services have been developed, research in this area continues to lag. An integrated model of palliative care has been suggested by the American Academy of Pediatrics and includes complementary and alternative services aimed at improving the well-being of children and their families. The first-known pediatric palliative aquatics program (PPAP) in California uses several techniques to decrease pain and promote well-being through relaxation and interaction between patients, specialists, and family members. This study investigates the perceptions of family members of their children's experiences with a PPAP. Researchers from an outside institution conducted focus groups and interviews. Themes were extracted from the focus group transcripts using Braun and Clarke's method of inductive thematic analysis. Data were collected at the host site, local libraries, and participant homes. Participants were primary caregivers and siblings (. n=23) of children in a PPAP, an independent children's respite, transitional, and end-of-life care facility in California. The research described and drew implications from the diverse perceptions that family members expressed about the benefits of having a child in the PPAP, including sensory, physical, and social experiences. Although the PPAP aims to promote well-being through relaxation, several other benefits were expressed by family members of children going through the program, including pain relief.

Original languageEnglish (US)
Pages (from-to)526-533
Number of pages8
JournalPain Management Nursing
Volume16
Issue number4
DOIs
StatePublished - Aug 1 2015

Fingerprint

Pediatrics
Focus Groups
Palliative Care
Pain
Terminal Care
Research
Caregivers
Libraries
Siblings
Research Personnel
Interviews

ASJC Scopus subject areas

  • Advanced and Specialized Nursing

Cite this

Families' Views of Pediatric Palliative Aquatics : A Qualitative Study. / Gaab, Erin; Steinhorn, David M.

In: Pain Management Nursing, Vol. 16, No. 4, 01.08.2015, p. 526-533.

Research output: Contribution to journalArticle

Gaab, Erin ; Steinhorn, David M. / Families' Views of Pediatric Palliative Aquatics : A Qualitative Study. In: Pain Management Nursing. 2015 ; Vol. 16, No. 4. pp. 526-533.
@article{8592c8a76b4145bb867c9febce39befb,
title = "Families' Views of Pediatric Palliative Aquatics: A Qualitative Study",
abstract = "Although pediatric palliative care policies and services have been developed, research in this area continues to lag. An integrated model of palliative care has been suggested by the American Academy of Pediatrics and includes complementary and alternative services aimed at improving the well-being of children and their families. The first-known pediatric palliative aquatics program (PPAP) in California uses several techniques to decrease pain and promote well-being through relaxation and interaction between patients, specialists, and family members. This study investigates the perceptions of family members of their children's experiences with a PPAP. Researchers from an outside institution conducted focus groups and interviews. Themes were extracted from the focus group transcripts using Braun and Clarke's method of inductive thematic analysis. Data were collected at the host site, local libraries, and participant homes. Participants were primary caregivers and siblings (. n=23) of children in a PPAP, an independent children's respite, transitional, and end-of-life care facility in California. The research described and drew implications from the diverse perceptions that family members expressed about the benefits of having a child in the PPAP, including sensory, physical, and social experiences. Although the PPAP aims to promote well-being through relaxation, several other benefits were expressed by family members of children going through the program, including pain relief.",
author = "Erin Gaab and Steinhorn, {David M.}",
year = "2015",
month = "8",
day = "1",
doi = "10.1016/j.pmn.2014.09.012",
language = "English (US)",
volume = "16",
pages = "526--533",
journal = "Pain Management Nursing",
issn = "1524-9042",
publisher = "W.B. Saunders Ltd",
number = "4",

}

TY - JOUR

T1 - Families' Views of Pediatric Palliative Aquatics

T2 - A Qualitative Study

AU - Gaab, Erin

AU - Steinhorn, David M.

PY - 2015/8/1

Y1 - 2015/8/1

N2 - Although pediatric palliative care policies and services have been developed, research in this area continues to lag. An integrated model of palliative care has been suggested by the American Academy of Pediatrics and includes complementary and alternative services aimed at improving the well-being of children and their families. The first-known pediatric palliative aquatics program (PPAP) in California uses several techniques to decrease pain and promote well-being through relaxation and interaction between patients, specialists, and family members. This study investigates the perceptions of family members of their children's experiences with a PPAP. Researchers from an outside institution conducted focus groups and interviews. Themes were extracted from the focus group transcripts using Braun and Clarke's method of inductive thematic analysis. Data were collected at the host site, local libraries, and participant homes. Participants were primary caregivers and siblings (. n=23) of children in a PPAP, an independent children's respite, transitional, and end-of-life care facility in California. The research described and drew implications from the diverse perceptions that family members expressed about the benefits of having a child in the PPAP, including sensory, physical, and social experiences. Although the PPAP aims to promote well-being through relaxation, several other benefits were expressed by family members of children going through the program, including pain relief.

AB - Although pediatric palliative care policies and services have been developed, research in this area continues to lag. An integrated model of palliative care has been suggested by the American Academy of Pediatrics and includes complementary and alternative services aimed at improving the well-being of children and their families. The first-known pediatric palliative aquatics program (PPAP) in California uses several techniques to decrease pain and promote well-being through relaxation and interaction between patients, specialists, and family members. This study investigates the perceptions of family members of their children's experiences with a PPAP. Researchers from an outside institution conducted focus groups and interviews. Themes were extracted from the focus group transcripts using Braun and Clarke's method of inductive thematic analysis. Data were collected at the host site, local libraries, and participant homes. Participants were primary caregivers and siblings (. n=23) of children in a PPAP, an independent children's respite, transitional, and end-of-life care facility in California. The research described and drew implications from the diverse perceptions that family members expressed about the benefits of having a child in the PPAP, including sensory, physical, and social experiences. Although the PPAP aims to promote well-being through relaxation, several other benefits were expressed by family members of children going through the program, including pain relief.

UR - http://www.scopus.com/inward/record.url?scp=84938740112&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=84938740112&partnerID=8YFLogxK

U2 - 10.1016/j.pmn.2014.09.012

DO - 10.1016/j.pmn.2014.09.012

M3 - Article

C2 - 25547919

AN - SCOPUS:84938740112

VL - 16

SP - 526

EP - 533

JO - Pain Management Nursing

JF - Pain Management Nursing

SN - 1524-9042

IS - 4

ER -