Existing data sets to support studies of dementia or significant cognitive impairment and comorbid chronic conditions

Janice F Bell; Annette L. Fitzpatrick; Catherine Copeland; Gloria Chi; Lesley Steinman; Robin Whitney; David C. Atkins; Lucinda L. Bryant; Francine Grodstein; Eric Larson; Rebecca Logsdon; Mark Snowden

doi:10.1016/j.jalz.2014.07.002

Existing data sets to support studies of dementia or significant cognitive impairment and comorbid chronic conditions

Janice F Bell, Annette L. Fitzpatrick, Catherine Copeland, Gloria Chi, Lesley Steinman, Robin Whitney, David C. Atkins, Lucinda L. Bryant, Francine Grodstein, Eric Larson, Rebecca Logsdon, Mark Snowden

Nursing

Research output: Contribution to journal › Article › peer-review

9 Scopus citations

Abstract

Background: Dementia or other significant cognitive impairment (SCI) are often comorbid with other chronic diseases. To promote collaborative research on the intersection of these conditions, we compiled a systematic inventory of major data resources. Methods: Large data sets measuring dementia and/or cognition and chronic conditions in adults were included in the inventory. Key features of the resources were abstracted including region, participant sociodemographic characteristics, study design, sample size, accessibility, and available measures of dementia and/or cognition and comorbidities. Results: 117 study data sets were identified; 53% included clinical diagnoses of dementia along with valid and reliable measures of cognition. Most (79%) used longitudinal cohort designs and 41% had sample sizes greater than 5000. Approximately 47% were European-based, 40% were US-based, and 11% were based in other countries. Conclusions: Many high-quality data sets exist to support collaborative studies of the effects of dementia or SCI on chronic conditions and to inform the development of evidence-based disease management programs.

Original language	English (US)
Pages (from-to)	622-638
Number of pages	17
Journal	Alzheimer's and Dementia
Volume	11
Issue number	6
DOIs	https://doi.org/10.1016/j.jalz.2014.07.002
State	Published - Jun 1 2015

Keywords

Chronic conditions
Cognitive impairment
Databases
Dementia
Multiple
Public health
Secondary Data analysis

ASJC Scopus subject areas

Clinical Neurology
Developmental Neuroscience
Cellular and Molecular Neuroscience
Psychiatry and Mental health
Geriatrics and Gerontology
Epidemiology
Health Policy

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Bell, J. F., Fitzpatrick, A. L., Copeland, C., Chi, G., Steinman, L., Whitney, R., Atkins, D. C., Bryant, L. L., Grodstein, F., Larson, E., Logsdon, R., & Snowden, M. (2015). Existing data sets to support studies of dementia or significant cognitive impairment and comorbid chronic conditions. Alzheimer's and Dementia, 11(6), 622-638. https://doi.org/10.1016/j.jalz.2014.07.002

Existing data sets to support studies of dementia or significant cognitive impairment and comorbid chronic conditions. / Bell, Janice F; Fitzpatrick, Annette L.; Copeland, Catherine; Chi, Gloria; Steinman, Lesley; Whitney, Robin; Atkins, David C.; Bryant, Lucinda L.; Grodstein, Francine; Larson, Eric; Logsdon, Rebecca; Snowden, Mark.

In: Alzheimer's and Dementia, Vol. 11, No. 6, 01.06.2015, p. 622-638.

Research output: Contribution to journal › Article › peer-review

Bell, JF, Fitzpatrick, AL, Copeland, C, Chi, G, Steinman, L, Whitney, R, Atkins, DC, Bryant, LL, Grodstein, F, Larson, E, Logsdon, R & Snowden, M 2015, 'Existing data sets to support studies of dementia or significant cognitive impairment and comorbid chronic conditions', Alzheimer's and Dementia, vol. 11, no. 6, pp. 622-638. https://doi.org/10.1016/j.jalz.2014.07.002

Bell, Janice F ; Fitzpatrick, Annette L. ; Copeland, Catherine ; Chi, Gloria ; Steinman, Lesley ; Whitney, Robin ; Atkins, David C. ; Bryant, Lucinda L. ; Grodstein, Francine ; Larson, Eric ; Logsdon, Rebecca ; Snowden, Mark. / Existing data sets to support studies of dementia or significant cognitive impairment and comorbid chronic conditions. In: Alzheimer's and Dementia. 2015 ; Vol. 11, No. 6. pp. 622-638.

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