Abstract
Chronic illness self-management is largelymoving from healthcare professionals and into the hands of the patient. One tool that has been promoted to facilitate self-management support of chronic illness by policymakers, health advocates, providers, and consumers is the personal health record. Little is known about how consumers effectively use personal health records for self-management support and for productive patient-provider interactions. The purpose of this study was to learn from chronically ill engaged, experienced, and educated (e-patient) adults how and why they use personal health records for self-management support and productive patient-provider interactions. Eighteen purposively selected consumers were interviewed in two communities.Qualitative descriptionmethods were used, and we used a grounded theory approach to analyzing interview data, which was digitally recorded and transcribed verbatim.We identified four major thematic categories that capture the perceptions of the chronically ill using personal health records: (1) patient engagement and health self-management, (2) access to and control over personal health data, (3) promotion of productive communication, and (4) opportunities for training and education. Knowledge gained from the e-patient personal health record users suggest that making improvements to the portal system and providing education to consumers and providers will increase the utility among the experienced users and encourage new users to embrace adoption and use.
| Original language | English (US) |
|---|---|
| Pages (from-to) | 229-237 |
| Number of pages | 9 |
| Journal | CIN - Computers Informatics Nursing |
| Volume | 33 |
| Issue number | 6 |
| DOIs | |
| State | Published - Sep 1 2015 |
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Keywords
- Chronic illness
- Patient-focused care
- Personal electronic health records
- Self-management
ASJC Scopus subject areas
- Health Informatics
- Nursing (miscellaneous)
Cite this
e-Patients perceptions of using personal health records for self-management support of chronic illness. / Gee, Perry M.; Paterniti, Debora A; Ward, Deborah; Miller, Lisa M Soederberg.
In: CIN - Computers Informatics Nursing, Vol. 33, No. 6, 01.09.2015, p. 229-237.Research output: Contribution to journal › Article
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TY - JOUR
T1 - e-Patients perceptions of using personal health records for self-management support of chronic illness
AU - Gee, Perry M.
AU - Paterniti, Debora A
AU - Ward, Deborah
AU - Miller, Lisa M Soederberg
PY - 2015/9/1
Y1 - 2015/9/1
N2 - Chronic illness self-management is largelymoving from healthcare professionals and into the hands of the patient. One tool that has been promoted to facilitate self-management support of chronic illness by policymakers, health advocates, providers, and consumers is the personal health record. Little is known about how consumers effectively use personal health records for self-management support and for productive patient-provider interactions. The purpose of this study was to learn from chronically ill engaged, experienced, and educated (e-patient) adults how and why they use personal health records for self-management support and productive patient-provider interactions. Eighteen purposively selected consumers were interviewed in two communities.Qualitative descriptionmethods were used, and we used a grounded theory approach to analyzing interview data, which was digitally recorded and transcribed verbatim.We identified four major thematic categories that capture the perceptions of the chronically ill using personal health records: (1) patient engagement and health self-management, (2) access to and control over personal health data, (3) promotion of productive communication, and (4) opportunities for training and education. Knowledge gained from the e-patient personal health record users suggest that making improvements to the portal system and providing education to consumers and providers will increase the utility among the experienced users and encourage new users to embrace adoption and use.
AB - Chronic illness self-management is largelymoving from healthcare professionals and into the hands of the patient. One tool that has been promoted to facilitate self-management support of chronic illness by policymakers, health advocates, providers, and consumers is the personal health record. Little is known about how consumers effectively use personal health records for self-management support and for productive patient-provider interactions. The purpose of this study was to learn from chronically ill engaged, experienced, and educated (e-patient) adults how and why they use personal health records for self-management support and productive patient-provider interactions. Eighteen purposively selected consumers were interviewed in two communities.Qualitative descriptionmethods were used, and we used a grounded theory approach to analyzing interview data, which was digitally recorded and transcribed verbatim.We identified four major thematic categories that capture the perceptions of the chronically ill using personal health records: (1) patient engagement and health self-management, (2) access to and control over personal health data, (3) promotion of productive communication, and (4) opportunities for training and education. Knowledge gained from the e-patient personal health record users suggest that making improvements to the portal system and providing education to consumers and providers will increase the utility among the experienced users and encourage new users to embrace adoption and use.
KW - Chronic illness
KW - Patient-focused care
KW - Personal electronic health records
KW - Self-management
UR - http://www.scopus.com/inward/record.url?scp=84942573728&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=84942573728&partnerID=8YFLogxK
U2 - 10.1097/CIN.0000000000000151
DO - 10.1097/CIN.0000000000000151
M3 - Article
VL - 33
SP - 229
EP - 237
JO - CIN - Computers Informatics Nursing
JF - CIN - Computers Informatics Nursing
SN - 1538-2931
IS - 6
ER -