e-Patients perceptions of using personal health records for self-management support of chronic illness

Perry M. Gee, Debora A Paterniti, Deborah Ward, Lisa M Soederberg Miller

Research output: Contribution to journalArticle

15 Citations (Scopus)

Abstract

Chronic illness self-management is largelymoving from healthcare professionals and into the hands of the patient. One tool that has been promoted to facilitate self-management support of chronic illness by policymakers, health advocates, providers, and consumers is the personal health record. Little is known about how consumers effectively use personal health records for self-management support and for productive patient-provider interactions. The purpose of this study was to learn from chronically ill engaged, experienced, and educated (e-patient) adults how and why they use personal health records for self-management support and productive patient-provider interactions. Eighteen purposively selected consumers were interviewed in two communities.Qualitative descriptionmethods were used, and we used a grounded theory approach to analyzing interview data, which was digitally recorded and transcribed verbatim.We identified four major thematic categories that capture the perceptions of the chronically ill using personal health records: (1) patient engagement and health self-management, (2) access to and control over personal health data, (3) promotion of productive communication, and (4) opportunities for training and education. Knowledge gained from the e-patient personal health record users suggest that making improvements to the portal system and providing education to consumers and providers will increase the utility among the experienced users and encourage new users to embrace adoption and use.

Original languageEnglish (US)
Pages (from-to)229-237
Number of pages9
JournalCIN - Computers Informatics Nursing
Volume33
Issue number6
DOIs
StatePublished - Sep 1 2015

Fingerprint

Personal Health Records
Forms and Records Control
Self Care
Chronic Disease
Health
Portal System
Education
Patient Participation
Hand
Communication
Interviews
Delivery of Health Care

Keywords

  • Chronic illness
  • Patient-focused care
  • Personal electronic health records
  • Self-management

ASJC Scopus subject areas

  • Health Informatics
  • Nursing (miscellaneous)

Cite this

e-Patients perceptions of using personal health records for self-management support of chronic illness. / Gee, Perry M.; Paterniti, Debora A; Ward, Deborah; Miller, Lisa M Soederberg.

In: CIN - Computers Informatics Nursing, Vol. 33, No. 6, 01.09.2015, p. 229-237.

Research output: Contribution to journalArticle

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