Abstract
The American Academy of Pediatrics strongly encourages the disclosure of HIV status to school-age children and further recommends that adolescents know their HIV status. Limited information exists on the impact of disclosure. We designed and implemented a disclosure model hypothesized to be associated with healthy psychological adjustment and improved medication adherence. We report the model's design and implementation and results of a quasi-experimental study of the disclosure's effects on health care professionals (n = 16), caregivers (n = 39), and HIV-infected youth (n = 40) in Puerto Rico. Information was collected from youth, caregivers, and professionals by semistructured interviews and questionnaires. Most youth (70%) had feelings of normalcy 6 months post-disclosure, and most also improved their adherence to therapy after disclosure as reported by both patients (58%) and caregivers (59%). Eighty-five percent of youth and 97% of caregivers considered disclosure a positive event for themselves and their families. Fewer health care professionals reported feelings of fear, discomfort, and insecurity after protocol participation.
| Original language | English (US) |
|---|---|
| Pages (from-to) | 181-189 |
| Number of pages | 9 |
| Journal | Journal of Developmental and Behavioral Pediatrics |
| Volume | 25 |
| Issue number | 3 |
| DOIs | |
| State | Published - Jun 2004 |
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Keywords
- Cultural sensitivity
- Disclosure
- HIV
- Pediatric
- Psychosocial
ASJC Scopus subject areas
- Pediatrics, Perinatology, and Child Health
- Behavioral Neuroscience
- Psychology(all)
- Developmental and Educational Psychology
Cite this
Disclosure model for pediatric patients living with HIV in Puerto Rico : Design, implentation, and evaluation. / Blasini, Ileana; Chantry, Caroline J; Cruz, Catherine; Ortiz, Laura; Salabarría, Iraida; Scalley, Nydia; Matos, Beatriz; Febo, Irma; Díaz, Clemente.
In: Journal of Developmental and Behavioral Pediatrics, Vol. 25, No. 3, 06.2004, p. 181-189.Research output: Contribution to journal › Article
}
TY - JOUR
T1 - Disclosure model for pediatric patients living with HIV in Puerto Rico
T2 - Design, implentation, and evaluation
AU - Blasini, Ileana
AU - Chantry, Caroline J
AU - Cruz, Catherine
AU - Ortiz, Laura
AU - Salabarría, Iraida
AU - Scalley, Nydia
AU - Matos, Beatriz
AU - Febo, Irma
AU - Díaz, Clemente
PY - 2004/6
Y1 - 2004/6
N2 - The American Academy of Pediatrics strongly encourages the disclosure of HIV status to school-age children and further recommends that adolescents know their HIV status. Limited information exists on the impact of disclosure. We designed and implemented a disclosure model hypothesized to be associated with healthy psychological adjustment and improved medication adherence. We report the model's design and implementation and results of a quasi-experimental study of the disclosure's effects on health care professionals (n = 16), caregivers (n = 39), and HIV-infected youth (n = 40) in Puerto Rico. Information was collected from youth, caregivers, and professionals by semistructured interviews and questionnaires. Most youth (70%) had feelings of normalcy 6 months post-disclosure, and most also improved their adherence to therapy after disclosure as reported by both patients (58%) and caregivers (59%). Eighty-five percent of youth and 97% of caregivers considered disclosure a positive event for themselves and their families. Fewer health care professionals reported feelings of fear, discomfort, and insecurity after protocol participation.
AB - The American Academy of Pediatrics strongly encourages the disclosure of HIV status to school-age children and further recommends that adolescents know their HIV status. Limited information exists on the impact of disclosure. We designed and implemented a disclosure model hypothesized to be associated with healthy psychological adjustment and improved medication adherence. We report the model's design and implementation and results of a quasi-experimental study of the disclosure's effects on health care professionals (n = 16), caregivers (n = 39), and HIV-infected youth (n = 40) in Puerto Rico. Information was collected from youth, caregivers, and professionals by semistructured interviews and questionnaires. Most youth (70%) had feelings of normalcy 6 months post-disclosure, and most also improved their adherence to therapy after disclosure as reported by both patients (58%) and caregivers (59%). Eighty-five percent of youth and 97% of caregivers considered disclosure a positive event for themselves and their families. Fewer health care professionals reported feelings of fear, discomfort, and insecurity after protocol participation.
KW - Cultural sensitivity
KW - Disclosure
KW - HIV
KW - Pediatric
KW - Psychosocial
UR - http://www.scopus.com/inward/record.url?scp=3242713351&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=3242713351&partnerID=8YFLogxK
U2 - 10.1097/00004703-200406000-00007
DO - 10.1097/00004703-200406000-00007
M3 - Article
VL - 25
SP - 181
EP - 189
JO - Journal of Developmental and Behavioral Pediatrics
JF - Journal of Developmental and Behavioral Pediatrics
SN - 0196-206X
IS - 3
ER -