Development of the Huntington disease work function scale

The PREDICT-HD Investigators and Coordinators of the Huntington Study Group

Research output: Contribution to journalArticle

5 Citations (Scopus)

Abstract

OBJECTIVE:: A work function measure specific for persons with prodromal Huntington disease (HD) was created to assist with workplace accommodations. METHODS:: A self-report HD Work Function (HDWF) measure was developed from focus group and expert validation. RESULTS:: Pilot studies with 238 people with prodromal HD, and 185 companions; and 89 people without prodromal HD, and 70 companions indicate that HDWF has acceptable internal consistency (Cronbach α = 0.77), acceptable interrater reliability (r = 0.58), and acceptable convergent validity with selected items from the Endicott Work Productivity Scale (r = -0.56), Social Adjustment Scale-Self Report (r = -0.29), and Everyday Cognition (r = -0.70). The HDWF can distinguish between people with prodromal HD and people with an HD family history who do not have prodromal HD (P < 0.0001). CONCLUSIONS:: The HDWF is a brief self-assessment that may be used to monitor work function.

Original languageEnglish (US)
Pages (from-to)1300-1308
Number of pages9
JournalJournal of Occupational and Environmental Medicine
Volume54
Issue number10
DOIs
StatePublished - Oct 1 2012

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Huntington Disease
Self Report
Social Adjustment
Focus Groups
Workplace
Cognition

ASJC Scopus subject areas

  • Public Health, Environmental and Occupational Health

Cite this

The PREDICT-HD Investigators and Coordinators of the Huntington Study Group (2012). Development of the Huntington disease work function scale. Journal of Occupational and Environmental Medicine, 54(10), 1300-1308. https://doi.org/10.1097/JOM.0b013e31825f30ab

Development of the Huntington disease work function scale. / The PREDICT-HD Investigators and Coordinators of the Huntington Study Group.

In: Journal of Occupational and Environmental Medicine, Vol. 54, No. 10, 01.10.2012, p. 1300-1308.

Research output: Contribution to journalArticle

The PREDICT-HD Investigators and Coordinators of the Huntington Study Group 2012, 'Development of the Huntington disease work function scale', Journal of Occupational and Environmental Medicine, vol. 54, no. 10, pp. 1300-1308. https://doi.org/10.1097/JOM.0b013e31825f30ab
The PREDICT-HD Investigators and Coordinators of the Huntington Study Group. Development of the Huntington disease work function scale. Journal of Occupational and Environmental Medicine. 2012 Oct 1;54(10):1300-1308. https://doi.org/10.1097/JOM.0b013e31825f30ab
The PREDICT-HD Investigators and Coordinators of the Huntington Study Group. / Development of the Huntington disease work function scale. In: Journal of Occupational and Environmental Medicine. 2012 ; Vol. 54, No. 10. pp. 1300-1308.
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abstract = "OBJECTIVE:: A work function measure specific for persons with prodromal Huntington disease (HD) was created to assist with workplace accommodations. METHODS:: A self-report HD Work Function (HDWF) measure was developed from focus group and expert validation. RESULTS:: Pilot studies with 238 people with prodromal HD, and 185 companions; and 89 people without prodromal HD, and 70 companions indicate that HDWF has acceptable internal consistency (Cronbach α = 0.77), acceptable interrater reliability (r = 0.58), and acceptable convergent validity with selected items from the Endicott Work Productivity Scale (r = -0.56), Social Adjustment Scale-Self Report (r = -0.29), and Everyday Cognition (r = -0.70). The HDWF can distinguish between people with prodromal HD and people with an HD family history who do not have prodromal HD (P < 0.0001). CONCLUSIONS:: The HDWF is a brief self-assessment that may be used to monitor work function.",
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