Development of an Instrument to Assess Stroke Caregivers' Readiness for the Transition Home

Michelle Camicia, Barbara J. Lutz, Theresa Harvath, Katherine K. Kim, Christiana Drake, Jill G. Joseph

Research output: Contribution to journalArticlepeer-review

9 Scopus citations


PURPOSE: The study purpose was to develop a measure to assess stroke caregivers' commitment and capacity to assume the caregiving role prior to discharge. DESIGN: Participants were caregivers of stroke survivors in an inpatient rehabilitation facility. METHODS: A sequential, multimethod approach, which included item generation from qualitative data, review of items by expert clinicians, cognitive interviews to determine response format (n = 22), and item clarity (n = 20), and an analysis of pilot data were utilized. FINDINGS: Cognitive interviewing provided information to improve item clarity. CONCLUSION: This instrument development approach resulted in the Preparedness Assessment for the Transition Home After Stroke (PATH-s), a 26-item self-report instrument. The PATH-s represents the domains of the Model of Caregiver Readiness, upon which the instrument was developed. CLINICAL RELEVANCE: The PATH-s, once further validated, may guide healthcare providers in the development of tailored care plans to address identified gaps and better prepare caregivers for the transition home.

Original languageEnglish (US)
Pages (from-to)287-298
Number of pages12
JournalRehabilitation Nursing
Issue number5
StatePublished - Sep 1 2020

ASJC Scopus subject areas

  • Nursing(all)
  • Physical Therapy, Sports Therapy and Rehabilitation
  • Rehabilitation


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