Development and pilot test of the shriners pediatric instrument for neuromuscular scoliosis (SPNS): A quality of life questionnaire for children with spinal cord injuries

Louis Hunter, Fred Molitor, Ross S. Chafetz, Mary Jane Mulcahey, Lawrence C. Vogel, Randal R. Betz, Craig M McDonald

Research output: Contribution to journalArticle

2 Scopus citations

Abstract

Background/Objective: Children and adolescents who have sustained a spinal cord injury (SCI) are at risk of developing spine deformities and secondary complications that may affect their quality of life. The Shriners Pediatric Instrument for Neuromuscular Scoliosis (SPINS) is a condition-specific instrument that was developed to measure the health-related quality of life (HRQOL) of this patient population. A pilot study was conducted to revise the SPINS and assess comprehensibility. Methods: Fourteen children with SCI (ages 6-16 y) from a pediatric hospital were administered either a child version (ages 10-18 y) or a parent version (ages 5-9 y) of the SPINS. Problematic items were identified based on participants' feedback or low statistical variance. Results: Ten of 14 (71.6%) respondents understood at least 90% of the items, and 13 out of 14 (92.9%) comprehended more than 80% of relevant items on the SPINS. Conclusion: The SPINS has demonstrated comprehensibility. The next step is to measure the validity and reliability of the instrument. The SPINS shows promise as a means of assessing quality of life related to brace effectiveness in children with SCI and neuromuscular scoliosis who primarily use a wheelchair for mobility.

Original languageEnglish (US)
JournalJournal of Spinal Cord Medicine
Volume30
Issue numberSUPPL. 1
StatePublished - 2007
Externally publishedYes

Keywords

  • Adolescence
  • Bracing
  • Child
  • Orthoses
  • Quality of life
  • Questionnaire
  • Rehabilitation
  • Scoliosis
  • Shriners hospitals
  • Spinal cord injuries

ASJC Scopus subject areas

  • Clinical Neurology

Fingerprint Dive into the research topics of 'Development and pilot test of the shriners pediatric instrument for neuromuscular scoliosis (SPNS): A quality of life questionnaire for children with spinal cord injuries'. Together they form a unique fingerprint.

  • Cite this