Cultivating a cycle of trust with diverse communities in practice-based research: A report from PRIME net

Christina M. Getrich, Andrew L. Sussman, Kimberly Campbell-Voytal, Janice Y. Tsoh, Robert L. Williams, Anthony E. Brown, Michael B. Potter, William Spears, Nancy Weller, John Pascoe, Kendra Schwartz, Anne Victoria Neale

Research output: Contribution to journalArticle

12 Citations (Scopus)

Abstract

PURPOSE Practice-based research networks (PBRNs) are increasingly seen as important vehicles to translate research into practice, although less is known about the process of engaging diverse communities in PBRN research. The objective of this study was to identify strategies for successfully recruiting and retaining diverse racial/ethnic communities into PBRN research studies. METHODS This collaborative, multisite study engaged 5 of the 8 networks of the Primary care MultiEthnic Network (PRIME Net) consortium that conducts research with traditionally underrepresented/underserved populations. We used a sequential, qualitative research design. We first conducted 1 key informant interview with each of 24 researchers experienced in recruiting research participants from 5 racial/ethnic communities (African American, Arab/Chaldean, Chinese, Hispanic, and Native American). Subsequently, we conducted 18 focus groups with 172 persons from these communities. RESULTS Participants' comments indicated that successful recruitment and retention of underrepresented populations in PBRN studies is linked to the overall research process. This process, which we termed the cycle of trust, entailed developing and sustaining relationships of trust during 4 interrelated stages: before the study, during study recruitment, throughout study conduct, and after study completion. Participants identified a set of flexible strategies within each stage and called for close engagement with clinic and community partners. CONCLUSIONS Our participants suggest that approaches to research that lay a foundation of trust, demonstrate respect for community members, and extend beyond the enrollment and data collection phases are essential to enhance the participation of diverse populations in PBRN research. These findings offer the PBRN community a guide toward achieving this important goal.

Original languageEnglish (US)
Pages (from-to)550-558
Number of pages9
JournalAnnals of Family Medicine
Volume11
Issue number6
DOIs
StatePublished - Nov 2013

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Research
Asian Americans
North American Indians
Qualitative Research
Vulnerable Populations
Focus Groups
Hispanic Americans
African Americans
Population
Primary Health Care
Research Design
Research Personnel
Interviews

Keywords

  • Minority groups
  • Patient recruitment
  • Populations
  • Practice-based research
  • Primary care
  • Trust
  • Underserved

ASJC Scopus subject areas

  • Family Practice

Cite this

Getrich, C. M., Sussman, A. L., Campbell-Voytal, K., Tsoh, J. Y., Williams, R. L., Brown, A. E., ... Neale, A. V. (2013). Cultivating a cycle of trust with diverse communities in practice-based research: A report from PRIME net. Annals of Family Medicine, 11(6), 550-558. https://doi.org/10.1370/afm.1543

Cultivating a cycle of trust with diverse communities in practice-based research : A report from PRIME net. / Getrich, Christina M.; Sussman, Andrew L.; Campbell-Voytal, Kimberly; Tsoh, Janice Y.; Williams, Robert L.; Brown, Anthony E.; Potter, Michael B.; Spears, William; Weller, Nancy; Pascoe, John; Schwartz, Kendra; Neale, Anne Victoria.

In: Annals of Family Medicine, Vol. 11, No. 6, 11.2013, p. 550-558.

Research output: Contribution to journalArticle

Getrich, CM, Sussman, AL, Campbell-Voytal, K, Tsoh, JY, Williams, RL, Brown, AE, Potter, MB, Spears, W, Weller, N, Pascoe, J, Schwartz, K & Neale, AV 2013, 'Cultivating a cycle of trust with diverse communities in practice-based research: A report from PRIME net', Annals of Family Medicine, vol. 11, no. 6, pp. 550-558. https://doi.org/10.1370/afm.1543
Getrich CM, Sussman AL, Campbell-Voytal K, Tsoh JY, Williams RL, Brown AE et al. Cultivating a cycle of trust with diverse communities in practice-based research: A report from PRIME net. Annals of Family Medicine. 2013 Nov;11(6):550-558. https://doi.org/10.1370/afm.1543
Getrich, Christina M. ; Sussman, Andrew L. ; Campbell-Voytal, Kimberly ; Tsoh, Janice Y. ; Williams, Robert L. ; Brown, Anthony E. ; Potter, Michael B. ; Spears, William ; Weller, Nancy ; Pascoe, John ; Schwartz, Kendra ; Neale, Anne Victoria. / Cultivating a cycle of trust with diverse communities in practice-based research : A report from PRIME net. In: Annals of Family Medicine. 2013 ; Vol. 11, No. 6. pp. 550-558.
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