Common Data Elements for National Institute of Mental Health–Funded Translational Early Psychosis Research

Dost Öngür, Cameron S Carter, Raquel E. Gur, Diana Perkins, Akira Sawa, Larry J. Seidman, Carol Tamminga, Wayne Huggins, Carol Hamilton

Research output: Contribution to journalReview article

Abstract

The National Institutes of Health has established the PhenX Toolkit as a web-based resource containing consensus measures freely available to the research community. The National Institute of Mental Health (NIMH) has introduced the Mental Health Research Core Collection as part of the PhenX Toolkit and recently convened the PhenX Early Psychosis Working Group to generate the PhenX Early Psychosis Specialty Collection. The Working Group consisted of two complementary panels for clinical and translational research. We review the process, deliberations, and products of the translational research panel. The Early Psychosis Specialty Collection rationale for measure selection as well as additional information and protocols for obtaining each measure are available on the PhenX website (https://www.phenxtoolkit.org). The NIMH strongly encourages investigators to use instruments from the PhenX Mental Health Research Collections in NIMH-funded studies and discourages use of alternative measures to collect similar data without justification. We also discuss some of the potential advances that can be achieved by collecting common data elements across large-scale longitudinal studies of early psychosis.

Original languageEnglish (US)
JournalBiological Psychiatry: Cognitive Neuroscience and Neuroimaging
DOIs
StateAccepted/In press - Jan 1 2019

Fingerprint

National Institute of Mental Health (U.S.)
Psychotic Disorders
Translational Medical Research
Research
Mental Health
National Institutes of Health (U.S.)
Longitudinal Studies
Consensus
Research Personnel
Common Data Elements

Keywords

  • Cognition
  • Data element
  • Early psychosis
  • Neuroimaging
  • PhenX
  • Schizophrenia

ASJC Scopus subject areas

  • Radiology Nuclear Medicine and imaging
  • Cognitive Neuroscience
  • Clinical Neurology
  • Biological Psychiatry

Cite this

Common Data Elements for National Institute of Mental Health–Funded Translational Early Psychosis Research. / Öngür, Dost; Carter, Cameron S; Gur, Raquel E.; Perkins, Diana; Sawa, Akira; Seidman, Larry J.; Tamminga, Carol; Huggins, Wayne; Hamilton, Carol.

In: Biological Psychiatry: Cognitive Neuroscience and Neuroimaging, 01.01.2019.

Research output: Contribution to journalReview article

Öngür, Dost ; Carter, Cameron S ; Gur, Raquel E. ; Perkins, Diana ; Sawa, Akira ; Seidman, Larry J. ; Tamminga, Carol ; Huggins, Wayne ; Hamilton, Carol. / Common Data Elements for National Institute of Mental Health–Funded Translational Early Psychosis Research. In: Biological Psychiatry: Cognitive Neuroscience and Neuroimaging. 2019.
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