Citizen science to further precision medicine: From vision to implementation

Carolyn Petersen, Robin R. Austin, Uba Backonja, Hugo Campos, Arlene E. Chung, Eric B. Hekler, Pei Yun S. Hsueh, Katherine K. Kim, Anthony Pho, Liz Salmi, Anthony Solomonides, Rupa S. Valdez

Research output: Contribution to journalReview articlepeer-review

11 Scopus citations


The active involvement of citizen scientists in setting research agendas, partnering with academic investigators to conduct research, analyzing and disseminating results, and implementing learnings from research can improve both processes and outcomes. Adopting a citizen science approach to the practice of precision medicine in clinical care and research will require healthcare providers, researchers, and institutions to address a number of technical, organizational, and citizen scientist collaboration issues. Some changes can be made with relative ease, while others will necessitate cultural shifts, redistribution of power, recommitment to shared goals, and improved communication. This perspective, based on a workshop held at the 2018 AMIA Annual Symposium, identifies current barriers and needed changes to facilitate broad adoption of a citizen science-based approach in healthcare.

Original languageEnglish (US)
Pages (from-to)2-8
Number of pages7
JournalJAMIA Open
Issue number1
StatePublished - 2021


  • Citizen science
  • Community participation
  • Consumer involvement
  • Healthcare systems
  • Patient acceptance of healthcare
  • Research methodology

ASJC Scopus subject areas

  • Health Informatics


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