"Cancer sucks," and other ponderings by adolescent and young adult cancer survivors

Brad Zebrack; Erin E. Kent; Theresa H Keegan; Ikuko Kato; Ashley Wilder Smith

doi:10.1080/07347332.2013.855959

"Cancer sucks," and other ponderings by adolescent and young adult cancer survivors

Brad Zebrack, Erin E. Kent, Theresa H Keegan, Ikuko Kato, Ashley Wilder Smith

Research output: Contribution to journal › Article › peer-review

56 Scopus citations

Abstract

As part of the National Cancer Institute's AYA HOPE study, 296 adolescent and young adults (AYAs) completed an open-ended survey item asking them to describe their medical care or experience with cancer. Patient, provider, and system-level characteristics all appear to influence AYAs perceptions of their medical care. Participants attributed levels of satisfaction with care to the availability and communication of information, the management of side-effects, and the expediency and flexibility of treatments. Struggles with health insurance and finances were evident. Findings contribute to a better understanding of AYAs cancer treatment experiences and will inform improvements to oncology care for this population.

Original language	English (US)
Pages (from-to)	1-15
Number of pages	15
Journal	Journal of Psychosocial Oncology
Volume	32
Issue number	1
DOIs	https://doi.org/10.1080/07347332.2013.855959
State	Published - Jan 1 2014
Externally published	Yes

Keywords

adolescent
medical care
psychosocial
qualitative research
young adult

ASJC Scopus subject areas

Applied Psychology
Oncology
Psychiatry and Mental health

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