Abstract
As part of the National Cancer Institute's AYA HOPE study, 296 adolescent and young adults (AYAs) completed an open-ended survey item asking them to describe their medical care or experience with cancer. Patient, provider, and system-level characteristics all appear to influence AYAs perceptions of their medical care. Participants attributed levels of satisfaction with care to the availability and communication of information, the management of side-effects, and the expediency and flexibility of treatments. Struggles with health insurance and finances were evident. Findings contribute to a better understanding of AYAs cancer treatment experiences and will inform improvements to oncology care for this population.
| Original language | English (US) |
|---|---|
| Pages (from-to) | 1-15 |
| Number of pages | 15 |
| Journal | Journal of Psychosocial Oncology |
| Volume | 32 |
| Issue number | 1 |
| DOIs | |
| State | Published - Jan 1 2014 |
| Externally published | Yes |
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Keywords
- adolescent
- medical care
- psychosocial
- qualitative research
- young adult
ASJC Scopus subject areas
- Applied Psychology
- Oncology
- Psychiatry and Mental health
Cite this
"Cancer sucks," and other ponderings by adolescent and young adult cancer survivors. / Zebrack, Brad; Kent, Erin E.; Keegan, Theresa H; Kato, Ikuko; Smith, Ashley Wilder.
In: Journal of Psychosocial Oncology, Vol. 32, No. 1, 01.01.2014, p. 1-15.Research output: Contribution to journal › Article
}
TY - JOUR
T1 - "Cancer sucks," and other ponderings by adolescent and young adult cancer survivors
AU - Zebrack, Brad
AU - Kent, Erin E.
AU - Keegan, Theresa H
AU - Kato, Ikuko
AU - Smith, Ashley Wilder
PY - 2014/1/1
Y1 - 2014/1/1
N2 - As part of the National Cancer Institute's AYA HOPE study, 296 adolescent and young adults (AYAs) completed an open-ended survey item asking them to describe their medical care or experience with cancer. Patient, provider, and system-level characteristics all appear to influence AYAs perceptions of their medical care. Participants attributed levels of satisfaction with care to the availability and communication of information, the management of side-effects, and the expediency and flexibility of treatments. Struggles with health insurance and finances were evident. Findings contribute to a better understanding of AYAs cancer treatment experiences and will inform improvements to oncology care for this population.
AB - As part of the National Cancer Institute's AYA HOPE study, 296 adolescent and young adults (AYAs) completed an open-ended survey item asking them to describe their medical care or experience with cancer. Patient, provider, and system-level characteristics all appear to influence AYAs perceptions of their medical care. Participants attributed levels of satisfaction with care to the availability and communication of information, the management of side-effects, and the expediency and flexibility of treatments. Struggles with health insurance and finances were evident. Findings contribute to a better understanding of AYAs cancer treatment experiences and will inform improvements to oncology care for this population.
KW - adolescent
KW - medical care
KW - psychosocial
KW - qualitative research
KW - young adult
UR - http://www.scopus.com/inward/record.url?scp=84892716237&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=84892716237&partnerID=8YFLogxK
U2 - 10.1080/07347332.2013.855959
DO - 10.1080/07347332.2013.855959
M3 - Article
C2 - 24428248
AN - SCOPUS:84892716237
VL - 32
SP - 1
EP - 15
JO - Journal of Psychosocial Oncology
JF - Journal of Psychosocial Oncology
SN - 0734-7332
IS - 1
ER -