Abstract
As part of the National Cancer Institute's AYA HOPE study, 296 adolescent and young adults (AYAs) completed an open-ended survey item asking them to describe their medical care or experience with cancer. Patient, provider, and system-level characteristics all appear to influence AYAs perceptions of their medical care. Participants attributed levels of satisfaction with care to the availability and communication of information, the management of side-effects, and the expediency and flexibility of treatments. Struggles with health insurance and finances were evident. Findings contribute to a better understanding of AYAs cancer treatment experiences and will inform improvements to oncology care for this population.
| Original language | English (US) |
|---|---|
| Pages (from-to) | 1-15 |
| Number of pages | 15 |
| Journal | Journal of Psychosocial Oncology |
| Volume | 32 |
| Issue number | 1 |
| DOIs | |
| State | Published - Jan 1 2014 |
| Externally published | Yes |
Keywords
- adolescent
- medical care
- psychosocial
- qualitative research
- young adult
ASJC Scopus subject areas
- Applied Psychology
- Oncology
- Psychiatry and Mental health
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Zebrack, B., Kent, E. E., Keegan, T. H., Kato, I., & Smith, A. W. (2014). "Cancer sucks," and other ponderings by adolescent and young adult cancer survivors. Journal of Psychosocial Oncology, 32(1), 1-15. https://doi.org/10.1080/07347332.2013.855959