"Cancer sucks," and other ponderings by adolescent and young adult cancer survivors

Brad Zebrack; Erin E. Kent; Theresa H Keegan; Ikuko Kato; Ashley Wilder Smith

doi:10.1080/07347332.2013.855959

"Cancer sucks," and other ponderings by adolescent and young adult cancer survivors

Brad Zebrack, Erin E. Kent, Theresa H Keegan, Ikuko Kato, Ashley Wilder Smith

Research output: Contribution to journal › Article › peer-review

63 Scopus citations

Abstract

As part of the National Cancer Institute's AYA HOPE study, 296 adolescent and young adults (AYAs) completed an open-ended survey item asking them to describe their medical care or experience with cancer. Patient, provider, and system-level characteristics all appear to influence AYAs perceptions of their medical care. Participants attributed levels of satisfaction with care to the availability and communication of information, the management of side-effects, and the expediency and flexibility of treatments. Struggles with health insurance and finances were evident. Findings contribute to a better understanding of AYAs cancer treatment experiences and will inform improvements to oncology care for this population.

Original language	English (US)
Pages (from-to)	1-15
Number of pages	15
Journal	Journal of Psychosocial Oncology
Volume	32
Issue number	1
DOIs	https://doi.org/10.1080/07347332.2013.855959
State	Published - Jan 1 2014
Externally published	Yes

Keywords

adolescent
medical care
psychosocial
qualitative research
young adult

ASJC Scopus subject areas

Applied Psychology
Oncology
Psychiatry and Mental health

Access to Document

10.1080/07347332.2013.855959

Fingerprint Dive into the research topics of '"Cancer sucks," and other ponderings by adolescent and young adult cancer survivors'. Together they form a unique fingerprint.

Cite this

@article{e05133a4235b4355a89b4645df947a05,

title = "{"}Cancer sucks,{"} and other ponderings by adolescent and young adult cancer survivors",

abstract = "As part of the National Cancer Institute's AYA HOPE study, 296 adolescent and young adults (AYAs) completed an open-ended survey item asking them to describe their medical care or experience with cancer. Patient, provider, and system-level characteristics all appear to influence AYAs perceptions of their medical care. Participants attributed levels of satisfaction with care to the availability and communication of information, the management of side-effects, and the expediency and flexibility of treatments. Struggles with health insurance and finances were evident. Findings contribute to a better understanding of AYAs cancer treatment experiences and will inform improvements to oncology care for this population.",

keywords = "adolescent, medical care, psychosocial, qualitative research, young adult",

author = "Brad Zebrack and Kent, {Erin E.} and Keegan, {Theresa H} and Ikuko Kato and Smith, {Ashley Wilder}",

year = "2014",

month = jan,

day = "1",

doi = "10.1080/07347332.2013.855959",

language = "English (US)",

volume = "32",

pages = "1--15",

journal = "Journal of Psychosocial Oncology",

issn = "0734-7332",

publisher = "Routledge",

number = "1",

}

TY - JOUR

T1 - "Cancer sucks," and other ponderings by adolescent and young adult cancer survivors

AU - Zebrack, Brad

AU - Kent, Erin E.

AU - Keegan, Theresa H

AU - Kato, Ikuko

AU - Smith, Ashley Wilder

PY - 2014/1/1

Y1 - 2014/1/1

N2 - As part of the National Cancer Institute's AYA HOPE study, 296 adolescent and young adults (AYAs) completed an open-ended survey item asking them to describe their medical care or experience with cancer. Patient, provider, and system-level characteristics all appear to influence AYAs perceptions of their medical care. Participants attributed levels of satisfaction with care to the availability and communication of information, the management of side-effects, and the expediency and flexibility of treatments. Struggles with health insurance and finances were evident. Findings contribute to a better understanding of AYAs cancer treatment experiences and will inform improvements to oncology care for this population.

AB - As part of the National Cancer Institute's AYA HOPE study, 296 adolescent and young adults (AYAs) completed an open-ended survey item asking them to describe their medical care or experience with cancer. Patient, provider, and system-level characteristics all appear to influence AYAs perceptions of their medical care. Participants attributed levels of satisfaction with care to the availability and communication of information, the management of side-effects, and the expediency and flexibility of treatments. Struggles with health insurance and finances were evident. Findings contribute to a better understanding of AYAs cancer treatment experiences and will inform improvements to oncology care for this population.

KW - adolescent

KW - medical care

KW - psychosocial

KW - qualitative research

KW - young adult

UR - http://www.scopus.com/inward/record.url?scp=84892716237&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=84892716237&partnerID=8YFLogxK

U2 - 10.1080/07347332.2013.855959

DO - 10.1080/07347332.2013.855959

M3 - Article

C2 - 24428248

AN - SCOPUS:84892716237

VL - 32

SP - 1

EP - 15

JO - Journal of Psychosocial Oncology

JF - Journal of Psychosocial Oncology

SN - 0734-7332

IS - 1

ER -

"Cancer sucks," and other ponderings by adolescent and young adult cancer survivors

Abstract

Keywords

ASJC Scopus subject areas

Access to Document

Other files and links

Cite this