"Cancer sucks," and other ponderings by adolescent and young adult cancer survivors

Brad Zebrack, Erin E. Kent, Theresa H Keegan, Ikuko Kato, Ashley Wilder Smith

Research output: Contribution to journalArticle

54 Scopus citations

Abstract

As part of the National Cancer Institute's AYA HOPE study, 296 adolescent and young adults (AYAs) completed an open-ended survey item asking them to describe their medical care or experience with cancer. Patient, provider, and system-level characteristics all appear to influence AYAs perceptions of their medical care. Participants attributed levels of satisfaction with care to the availability and communication of information, the management of side-effects, and the expediency and flexibility of treatments. Struggles with health insurance and finances were evident. Findings contribute to a better understanding of AYAs cancer treatment experiences and will inform improvements to oncology care for this population.

Original languageEnglish (US)
Pages (from-to)1-15
Number of pages15
JournalJournal of Psychosocial Oncology
Volume32
Issue number1
DOIs
StatePublished - Jan 1 2014
Externally publishedYes

Keywords

  • adolescent
  • medical care
  • psychosocial
  • qualitative research
  • young adult

ASJC Scopus subject areas

  • Applied Psychology
  • Oncology
  • Psychiatry and Mental health

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