Abstract
As part of the National Cancer Institute's AYA HOPE study, 296 adolescent and young adults (AYAs) completed an open-ended survey item asking them to describe their medical care or experience with cancer. Patient, provider, and system-level characteristics all appear to influence AYAs perceptions of their medical care. Participants attributed levels of satisfaction with care to the availability and communication of information, the management of side-effects, and the expediency and flexibility of treatments. Struggles with health insurance and finances were evident. Findings contribute to a better understanding of AYAs cancer treatment experiences and will inform improvements to oncology care for this population.
Original language | English (US) |
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Pages (from-to) | 1-15 |
Number of pages | 15 |
Journal | Journal of Psychosocial Oncology |
Volume | 32 |
Issue number | 1 |
DOIs | |
State | Published - Jan 1 2014 |
Externally published | Yes |
Keywords
- adolescent
- medical care
- psychosocial
- qualitative research
- young adult
ASJC Scopus subject areas
- Applied Psychology
- Oncology
- Psychiatry and Mental health