Building a chain of trust: Using policy and practice to enhance trustworthy clinical data discovery and sharing

Nicholas Anderson; Kelly Edwards

doi:10.1145/1920320.1920323

Building a chain of trust: Using policy and practice to enhance trustworthy clinical data discovery and sharing

Nicholas Anderson, Kelly Edwards

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution

17 Scopus citations

Abstract

Advances and significant national infrastructure investment into clinical information systems are spurring a demand for secondary use and sharing of clinical and genetic data for translational research. In this paper, we describe the need for technically leveraged policy models and governance strategies to support data sharing between a range of disparate stakeholders where trust is not easily established or maintained.

Original language	English (US)
Title of host publication	ACM International Conference Proceeding Series
Pages	15-20
Number of pages	6
DOIs	https://doi.org/10.1145/1920320.1920323
State	Published - 2010
Externally published	Yes
Event	2010 Workshop on Governance of Technology, Information, and Policies GTIP 2010, in Conjunction with the 26th Annual Computer Security Applications Conference - Austin, TX, United States Duration: Dec 7 2010 → Dec 7 2010

Other

Other	2010 Workshop on Governance of Technology, Information, and Policies GTIP 2010, in Conjunction with the 26th Annual Computer Security Applications Conference
Country	United States
City	Austin, TX
Period	12/7/10 → 12/7/10

Keywords

Clinical data
Compliance with government regulations
Data sharing
Policy governance
Translational health research
Trust

ASJC Scopus subject areas

Human-Computer Interaction
Computer Networks and Communications
Computer Vision and Pattern Recognition
Software

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Anderson, N & Edwards, K 2010, Building a chain of trust: Using policy and practice to enhance trustworthy clinical data discovery and sharing. in ACM International Conference Proceeding Series. pp. 15-20, 2010 Workshop on Governance of Technology, Information, and Policies GTIP 2010, in Conjunction with the 26th Annual Computer Security Applications Conference, Austin, TX, United States, 12/7/10. https://doi.org/10.1145/1920320.1920323

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AB - Advances and significant national infrastructure investment into clinical information systems are spurring a demand for secondary use and sharing of clinical and genetic data for translational research. In this paper, we describe the need for technically leveraged policy models and governance strategies to support data sharing between a range of disparate stakeholders where trust is not easily established or maintained.

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Building a chain of trust: Using policy and practice to enhance trustworthy clinical data discovery and sharing

Abstract

Other

Keywords

ASJC Scopus subject areas

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