Abstract
Advances and significant national infrastructure investment into clinical information systems are spurring a demand for secondary use and sharing of clinical and genetic data for translational research. In this paper, we describe the need for technically leveraged policy models and governance strategies to support data sharing between a range of disparate stakeholders where trust is not easily established or maintained.
| Original language | English (US) |
|---|---|
| Title of host publication | ACM International Conference Proceeding Series |
| Pages | 15-20 |
| Number of pages | 6 |
| DOIs | |
| State | Published - 2010 |
| Externally published | Yes |
| Event | 2010 Workshop on Governance of Technology, Information, and Policies GTIP 2010, in Conjunction with the 26th Annual Computer Security Applications Conference - Austin, TX, United States Duration: Dec 7 2010 → Dec 7 2010 |
Other
| Other | 2010 Workshop on Governance of Technology, Information, and Policies GTIP 2010, in Conjunction with the 26th Annual Computer Security Applications Conference |
|---|---|
| Country | United States |
| City | Austin, TX |
| Period | 12/7/10 → 12/7/10 |
Keywords
- Clinical data
- Compliance with government regulations
- Data sharing
- Policy governance
- Translational health research
- Trust
ASJC Scopus subject areas
- Human-Computer Interaction
- Computer Networks and Communications
- Computer Vision and Pattern Recognition
- Software
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Cite this
Anderson, N., & Edwards, K. (2010). Building a chain of trust: Using policy and practice to enhance trustworthy clinical data discovery and sharing. In ACM International Conference Proceeding Series (pp. 15-20) https://doi.org/10.1145/1920320.1920323