Building a chain of trust: Using policy and practice to enhance trustworthy clinical data discovery and sharing

Nicholas Anderson, Kelly Edwards

Research output: Chapter in Book/Report/Conference proceedingConference contribution

16 Scopus citations

Abstract

Advances and significant national infrastructure investment into clinical information systems are spurring a demand for secondary use and sharing of clinical and genetic data for translational research. In this paper, we describe the need for technically leveraged policy models and governance strategies to support data sharing between a range of disparate stakeholders where trust is not easily established or maintained.

Original languageEnglish (US)
Title of host publicationACM International Conference Proceeding Series
Pages15-20
Number of pages6
DOIs
StatePublished - 2010
Externally publishedYes
Event2010 Workshop on Governance of Technology, Information, and Policies GTIP 2010, in Conjunction with the 26th Annual Computer Security Applications Conference - Austin, TX, United States
Duration: Dec 7 2010Dec 7 2010

Other

Other2010 Workshop on Governance of Technology, Information, and Policies GTIP 2010, in Conjunction with the 26th Annual Computer Security Applications Conference
CountryUnited States
CityAustin, TX
Period12/7/1012/7/10

Keywords

  • Clinical data
  • Compliance with government regulations
  • Data sharing
  • Policy governance
  • Translational health research
  • Trust

ASJC Scopus subject areas

  • Human-Computer Interaction
  • Computer Networks and Communications
  • Computer Vision and Pattern Recognition
  • Software

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