Attitudes and Decision Making Related to Pregnancy Among Young Women with Cystic Fibrosis

Traci M. Kazmerski, Theresa Gmelin, Breonna Slocum, Sonya Borrero, Elizabeth Miller

Research output: Contribution to journalArticle

13 Scopus citations

Abstract

Introduction The number of female patients with CF able to consider pregnancy has increased with improved therapies. This study explored attitudes and decision making regarding pregnancy among young women with CF. Methods Twenty-two women with CF ages 18–30 years completed semi-structured, in-person interviews exploring experiences with preconception counseling and reproductive care in the CF setting. Interviews were audio-recorded, transcribed, and coded using a thematic analysis approach. Results Participants indicated CF is a major factor in pregnancy decision making. Although women acknowledged that CF influences attitudes toward pregnancy, many expressed confusion about how CF can affect fertility/pregnancy. Many perceived disapproval from CF providers regarding pregnancy and were dissatisfied with reproductive care in the CF setting. Discussion Young female patients with CF reported poor understanding of the effect of CF on fertility and pregnancy and limited preconception counseling in CF care. Improvements in female sexual and reproductive health care in CF are warranted.

Original languageEnglish (US)
Pages (from-to)1-7
Number of pages7
JournalMaternal and Child Health Journal
DOIs
StateAccepted/In press - Aug 16 2016
Externally publishedYes

Keywords

  • Cystic fibrosis
  • Fertility
  • Pregnancy
  • Sexual and reproductive health

ASJC Scopus subject areas

  • Epidemiology
  • Pediatrics, Perinatology, and Child Health
  • Obstetrics and Gynecology
  • Public Health, Environmental and Occupational Health

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