A personal health network for chemotherapy care coordination: Evaluation of usability among patients

Katherine K Kim, Janice F Bell, Richard J Bold, Andra Davis, Victoria Ngo, Sarah C. Reed, Jill G Joseph

Research output: Chapter in Book/Report/Conference proceedingConference contribution

1 Scopus citations

Abstract

Cancer is a top concern globally. Cancer care suffers from lack of coordination, silos of information, and high cost. Interest is emerging in personcentered technology to assist with coordination to address these challenges. This study evaluates the usability of the "personal health network" (PHN), a novel solution leveraging social networking and mobile technologies, among individuals undergoing chemotherapy and receiving care coordination. Early results from interviews of 12 participants in a randomized pragmatic trial suggest that they feel more connected to the healthcare team using the PHN, find value in access to the patient education library, and are better equipped to organize the many activities that occur during chemotherapy. Improvements are needed in navigation, connectivity, and integration with electronic health records. Findings contribute to improvements in the PHN and informs a roadmap for potentially greater impact in technology-enabled cancer care coordination.

Original languageEnglish (US)
Title of host publicationNursing Informatics 2016 - eHealth for All: Every Level Collaboration - From Project to Realization
PublisherIOS Press
Pages232-236
Number of pages5
Volume225
ISBN (Electronic)9781614996576
DOIs
StatePublished - 2016
Event13th International Conference on Nursing Informatics, NI 2016 - Geneva, Switzerland
Duration: Jun 25 2016Jun 29 2016

Publication series

NameStudies in Health Technology and Informatics
Volume225
ISSN (Print)09269630
ISSN (Electronic)18798365

Other

Other13th International Conference on Nursing Informatics, NI 2016
CountrySwitzerland
CityGeneva
Period6/25/166/29/16

Keywords

  • Care coordination
  • Chemotherapy
  • Mobile technology
  • Oncology
  • Person-centered
  • Social network

ASJC Scopus subject areas

  • Biomedical Engineering
  • Health Informatics
  • Health Information Management

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  • Cite this

    Kim, K. K., Bell, J. F., Bold, R. J., Davis, A., Ngo, V., Reed, S. C., & Joseph, J. G. (2016). A personal health network for chemotherapy care coordination: Evaluation of usability among patients. In Nursing Informatics 2016 - eHealth for All: Every Level Collaboration - From Project to Realization (Vol. 225, pp. 232-236). (Studies in Health Technology and Informatics; Vol. 225). IOS Press. https://doi.org/10.3233/978-1-61499-658-3-232