Abstract
Cancer is the second leading cause of death in the United States. Cancer care is a complex and complicated process involving diverse practitioners, multiple specialists, and a range of inpatient, outpatient, and home care services with numerous transitions for the patients. Cancer patients undergoing chemotherapy are at risk of unplanned emergency visits and hospitalizations and can benefit from care coordination. There are few examples of systems that fully engage patients, family and caregivers along with clinicians and other care resources to collaboratively coordinate chemotherapy. This paper reports on the development of a prototype 'personal health network' (PHN) using social networking technology to support patient-centered chemotherapy care coordination in a comprehensive cancer center. Requirements for the prototype were generated by analyzing two frameworks, the cancer continuum framework and the framework for information technology in care coordination, and reviewing the literature on self-management and care coordination. The resulting requirements were implemented and reviewed with a trans-disciplinary team of clinicians and researchers. The PHN was found to fulfill the key requirements identified through the analysis of frameworks. A prototype was built rapidly and reviewed by an internal trans-disciplinary team. The refined prototype will be field tested with patients and nurse care coordinators to assess usefulness and usability in preparation for a larger scale clinical trial.
| Original language | English (US) |
|---|---|
| Title of host publication | 2014 International Conference on Collaboration Technologies and Systems, CTS 2014 |
| Publisher | IEEE Computer Society |
| Pages | 449-456 |
| Number of pages | 8 |
| ISBN (Print) | 9781479951567 |
| DOIs | |
| State | Published - 2014 |
| Event | 2014 15th International Conference on Collaboration Technologies and Systems, CTS 2014 - Minneapolis, MN, United States Duration: May 19 2014 → May 23 2014 |
Other
| Other | 2014 15th International Conference on Collaboration Technologies and Systems, CTS 2014 |
|---|---|
| Country | United States |
| City | Minneapolis, MN |
| Period | 5/19/14 → 5/23/14 |
Fingerprint
Keywords
- cancer
- chemotherapy
- nurse care coordination
- personal health network
- requirements
- social network
ASJC Scopus subject areas
- Computer Networks and Communications
- Control and Systems Engineering
Cite this
A novel personal health network for patient-centered chemotherapy care coordination. / Kim, Katherine K; Bell, Janice F; Reed, Sarah; Joseph, Jill G; Bold, Richard J; Cerrone, Kimberlie L.; Altobello, Daniel; Homchowdhury, Joydip.
2014 International Conference on Collaboration Technologies and Systems, CTS 2014. IEEE Computer Society, 2014. p. 449-456 6867603.Research output: Chapter in Book/Report/Conference proceeding › Conference contribution
}
TY - GEN
T1 - A novel personal health network for patient-centered chemotherapy care coordination
AU - Kim, Katherine K
AU - Bell, Janice F
AU - Reed, Sarah
AU - Joseph, Jill G
AU - Bold, Richard J
AU - Cerrone, Kimberlie L.
AU - Altobello, Daniel
AU - Homchowdhury, Joydip
PY - 2014
Y1 - 2014
N2 - Cancer is the second leading cause of death in the United States. Cancer care is a complex and complicated process involving diverse practitioners, multiple specialists, and a range of inpatient, outpatient, and home care services with numerous transitions for the patients. Cancer patients undergoing chemotherapy are at risk of unplanned emergency visits and hospitalizations and can benefit from care coordination. There are few examples of systems that fully engage patients, family and caregivers along with clinicians and other care resources to collaboratively coordinate chemotherapy. This paper reports on the development of a prototype 'personal health network' (PHN) using social networking technology to support patient-centered chemotherapy care coordination in a comprehensive cancer center. Requirements for the prototype were generated by analyzing two frameworks, the cancer continuum framework and the framework for information technology in care coordination, and reviewing the literature on self-management and care coordination. The resulting requirements were implemented and reviewed with a trans-disciplinary team of clinicians and researchers. The PHN was found to fulfill the key requirements identified through the analysis of frameworks. A prototype was built rapidly and reviewed by an internal trans-disciplinary team. The refined prototype will be field tested with patients and nurse care coordinators to assess usefulness and usability in preparation for a larger scale clinical trial.
AB - Cancer is the second leading cause of death in the United States. Cancer care is a complex and complicated process involving diverse practitioners, multiple specialists, and a range of inpatient, outpatient, and home care services with numerous transitions for the patients. Cancer patients undergoing chemotherapy are at risk of unplanned emergency visits and hospitalizations and can benefit from care coordination. There are few examples of systems that fully engage patients, family and caregivers along with clinicians and other care resources to collaboratively coordinate chemotherapy. This paper reports on the development of a prototype 'personal health network' (PHN) using social networking technology to support patient-centered chemotherapy care coordination in a comprehensive cancer center. Requirements for the prototype were generated by analyzing two frameworks, the cancer continuum framework and the framework for information technology in care coordination, and reviewing the literature on self-management and care coordination. The resulting requirements were implemented and reviewed with a trans-disciplinary team of clinicians and researchers. The PHN was found to fulfill the key requirements identified through the analysis of frameworks. A prototype was built rapidly and reviewed by an internal trans-disciplinary team. The refined prototype will be field tested with patients and nurse care coordinators to assess usefulness and usability in preparation for a larger scale clinical trial.
KW - cancer
KW - chemotherapy
KW - nurse care coordination
KW - personal health network
KW - requirements
KW - social network
UR - http://www.scopus.com/inward/record.url?scp=84906232964&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=84906232964&partnerID=8YFLogxK
U2 - 10.1109/CTS.2014.6867603
DO - 10.1109/CTS.2014.6867603
M3 - Conference contribution
AN - SCOPUS:84906232964
SN - 9781479951567
SP - 449
EP - 456
BT - 2014 International Conference on Collaboration Technologies and Systems, CTS 2014
PB - IEEE Computer Society
ER -